The most common question on Cushing’s support groups is “Is this a symptom of Cushing’s?” and so I thought I would share what I experienced while having Cushing’s Syndrome. I was undiagnosed for 10 years and then had surgery in the Fall of 2017 to remove the tumor on my left adrenal gland causing the problem.
Hope this helps! Follow me on social media (click links at top or bottom of page) for a post on Cushing’s and Health every Wednesday! Sign up for my Very Occasional Newsletter for updates on my creative projects including my memoir on Cushing’s!
What is Cushing’s? Read about this devastating illness here.
My Personal Cushing’s Symptoms
(ALL WERE NEW BEFORE THIS TIME. ALL DISAPPEARED COMPLETELY OR DIMINISHED GREATLY WITHIN ONE YEAR OF SURGERY)
Experienced from 2007 – 2017
non-healing foot fractures on both feet from June 2016 – June 2017
pain/soreness and swelling in all joints
soreness on side-ribs
crumbling teeth/severe tooth decay
2013 shoulder and arm pain that lasted for about 8 months.
Muscle weakness that got worse and worse over the years no matter how I exercised.
Fibromyalgia: painful to the touch spots on my body, most severe spots on my lower back.
bumps/sores on fingers
skin fungus on chest and back
moon face: swelling/puffiness
numbness in arms/legs
creepy crawly feeling back of neck and shoulders and face
Itchy spots randomly at all times
mental fog/concentration issues
Lyme disease (2013 positive test. negative late 2014)
random sharp “needle prick” pain around body, but most often feet and legs
Restless legs syndrome
Excessive cravings for sugar
Severe pinworm infection 2008
Acid reflux (severe/daily)
Occasional blood in stool
Excessive weight gain, concentrated in mid-section.
Constant need to urinate
severe and recurring allergies/sinus infections/ear infections
sleep apnea (any sleep position)
sick often with colds, several times a year.
fat and swelling of throat constricting breathing
out of breath in any activity
Cognitive trouble/mental fog/memory issues/hard to read and write
Unprovoked bouts of Rage.
hypothyroidism (diagnosed 2016? Treated with Levothyroxine- decreased swelling)
benign growths on thyroid
fatty and swollen neck interfere with breathing and swallowing (even after diagnosis and treatment for hypothyroidism)
hump on neck/upper shoulders
Menstrual cycle erratic and longer between periods (50 days or more)
Low sex drive.
Inability to orgasm
excessive swelling in feet and hands
irregular body temperature, often extremes in different parts of my body at once
blood pressure rose from 82/60 to 118/72
see “stars” every time I stood, even moving slowly.
random heart flutters and strong palpitations even when resting