My Personal Cushing’s Symptoms List

The most common question on Cushing’s support groups is “Is this a symptom of Cushing’s?” and so I thought I would share what I experienced while having Cushing’s Syndrome. I was undiagnosed for 10 years and then had surgery in the Fall of 2017 to remove the tumor on my left adrenal gland causing the problem. 

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What is Cushing’s? Read about this devastating illness here.

My Personal Cushing’s Symptoms

(ALL WERE NEW BEFORE THIS TIME. ALL DISAPPEARED COMPLETELY OR DIMINISHED GREATLY WITHIN ONE YEAR OF SURGERY)

Experienced from 2007 – 2017

 

Skeletal:

non-healing foot fractures on both feet from June 2016 – June 2017

pain/soreness and swelling in all joints

soreness on side-ribs

crumbling teeth/severe tooth decay

Osteopenia

Muscular:

2013 shoulder and arm pain that lasted for about 8 months.

Muscle weakness that got worse and worse over the years no matter how I exercised.

Fibromyalgia: painful to the touch spots on my body, most severe spots on my lower back. 

Integumentary System:

jawline acne

thinning hair

lip sores

bumps/sores on fingers

eczema

skin fungus on chest and back

severe dandruff

moon face: swelling/puffiness

Nervous:

numbness in arms/legs

creepy crawly feeling back of neck and shoulders and face

Itchy spots randomly at all times

mental fog/concentration issues

migraines

Lyme disease (2013 positive test. negative late 2014)

random sharp “needle prick” pain around body, but most often feet and legs

Restless legs syndrome

Digestive:

Excessive cravings for sugar

Severe pinworm infection 2008

Acid reflux (severe/daily)

Occasional blood in stool

Excessive weight gain, concentrated in mid-section.

Always thirsty

Constant need to urinate

Respiratory:

severe and recurring allergies/sinus infections/ear infections

sleep apnea (any sleep position)

sick often with colds, several times a year.

fat and swelling of throat constricting breathing

out of breath in any activity

laborious breathing

Psychological:

Depression

Anxiety/Panic attacks

Cognitive trouble/mental fog/memory issues/hard to read and write

Unprovoked bouts of Rage.

Endocrine:

Constant exhaustion

hypothyroidism (diagnosed 2016? Treated with Levothyroxine- decreased swelling)

benign growths on thyroid

fatty and swollen neck interfere with breathing and swallowing (even after diagnosis and treatment for hypothyroidism)

hump on neck/upper shoulders

Pre-diabetic

Reproductive:

Menstrual cycle erratic and longer between periods (50 days or more)

Low sex drive.

Inability to orgasm

Circulatory:

excessive swelling in feet and hands

irregular body temperature, often extremes in different parts of my body at once

blood pressure rose from 82/60 to 118/72

see “stars” every time I stood, even moving slowly.

random heart flutters and strong palpitations even when resting 

restless legs.

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